AVM in India

Data of AVM in India

Arteriovenous malformations (AVMs) are rare vascular anomalies characterized by abnormal connections between arteries and veins, bypassing the capillary system. Globally, the incidence of AVMs is estimated to be approximately 1 to 1.5 per 100,000 person-years, with a prevalence of about 0.01% in the general population. In India, specific data detailing the prevalence of AVMs in rural versus urban populations are limited. However, a retrospective study conducted at Nizam's Institute of Medical Sciences in South India analyzed cases of central nervous system vascular malformations diagnosed between April 2010 and April 2014.

While this study provides valuable insights into the occurrence of AVMs within a tertiary care setting, it does not offer a comparative analysis between rural and urban populations.

Given the rarity of AVMs and the limited availability of comprehensive epidemiological studies in India, particularly those distinguishing between rural and urban areas, it is challenging to provide precise prevalence rates. Further large-scale, population-based studies are necessary to elucidate the distribution and characteristics of AVMs across different demographics and regions within the country.

Approximately cost for procedure of AVM

The cost of treating arteriovenous malformations (AVMs) in India varies based on factors such as the treatment modality, hospital, and the complexity of the case. On average, patients might expect to pay anywhere from ₹1,00,000 to ₹4,50,000 for AVM embolization procedures. For surgical interventions, the costs can range from approximately ₹1,00,000 to ₹5,00,000. When considering treatment abroad, costs are generally higher. For instance, in European hospitals, the cost of AVM treatment can range from $23,000 to $30,840.

In the United States, the overall median cost of treatment is approximately $77,865, with surgical procedures involving preoperative embolization being the costliest at around $91,948. It's important to note that these figures are approximate and can vary based on individual circumstances, including the specific medical center, the patient's condition, and the chosen treatment approach. Therefore, it's advisable to consult directly with medical providers to obtain the most accurate and up-to-date information.

Challenges faced by India Patients

Patients in India with arteriovenous malformations (AVMs) face several challenges, including limited awareness about the condition among the general population and healthcare providers, leading to delayed diagnosis and treatment. Access to specialized care is often restricted to urban areas, making it difficult for patients from rural regions to receive timely and appropriate intervention. The high cost of advanced treatment options, such as embolization, surgery, or radiosurgery, adds a significant financial burden, particularly for low-income families. Additionally, the lack of comprehensive insurance coverage for AVM treatments and inadequate patient support systems further exacerbate the struggles faced by patients and their families.

Specialised AVM Centre

We as a society are going to file a case for approach of cost of treatment under the insurance for these patients.

India has several specialized centers for the diagnosis and treatment of arteriovenous malformations (AVMs), equipped with advanced technology and multidisciplinary teams. Renowned institutions include the All India Institute of Medical Sciences (AIIMS) in New Delhi, Fortis Hospital, Mohali, Christian Medical College (CMC) in Vellore, and NIMHANS (National Institute of Mental Health and Neurosciences) in Bengaluru, which are known for their expertise in neurosurgery and interventional radiology. Other prominent centers like Apollo Hospitals, Fortis Hospitals, and Kokilaben Dhirubhai Ambani Hospital offer state-of-the-art facilities for embolization, surgery, and radiosurgery. These centers focus on early detection and personalized treatment plans to prevent complications and ensure better outcomes, making them vital for managing AVM cases before they worsen. At Fortis Hospital, Mohali we take specialized care of these patients and run a dedicated cause to take care of these patients.